WAVE of Support

About Us

Our Mission

“Advocating for individuals with bleeding disorders and rare diseases through education, support, and genuine connections that make a lasting impact.”

Living with a bleeding disorder or rare disease can feel overwhelming, but you don’t have to face it alone. At Wave of Support, we’re here to provide a community of support, education, and advocacy—built on genuine connections.

Our mission is simple: raise awareness, share resources, and offer a space where no one feels alone. We believe in the power of compassion, knowledge, and change to drive lasting impact.

Whether you’re newly diagnosed, managing your condition, or supporting someone who is, you belong here. Together, we can amplify voices, foster understanding, and create waves that make a difference.

Faces of WAVES

Stormy Johnson

Executive Director

678-471-5719
[email protected]

Brandee Cookston

Associate Director & Co-Founder

251-656-2517
[email protected]

Whitney Hartwig

Administrative Director

678-361-7332
[email protected]

Kim Wilt

Kim Wilt

Outreach Coordinator

540-209-1155
[email protected]

Our Sponsors

We are grateful for the generous support of these organizations