Our Team

Stormy Johnson brings over 20 years of heartfelt dedication to the bleeding disorders community. As a passionate advocate, especially for women facing these often-overlooked conditions, she’s made it her mission to ensure no one walks their journey alone. Stormy leads with empathy, authenticity, and a deep understanding of the challenges families and individuals face. Whether speaking at events or working behind the scenes on community initiatives, she’s about building connections, raising awareness, and ensuring every voice is heard.

With hands-on experience serving on advisory boards and collaborative projects, Stormy is committed to creating meaningful change. Her drive comes from a personal passion to help people get the right diagnosis, the right care, and the support they deserve—at every step of the way.